Find out about some of the families that have received care from the Children’s Hospice at Home Team that the Pepper Foundation helps to fund.
Every year, The Pepper Foundation and the Children’s Hospice at Home service managed by Rennie Grove Hospice Care help between 50 and 60 families. Every child’s healthcare needs are different, and every family has different circumstances to take into consideration. The nursing team provides services that meet the unique care requirements of each patient.
These are some of the stories from families we have helped.
Six-year-old Sienna is a feisty, confident, outgoing girl. She was diagnosed with neuroblastoma at an early age. Sienna’s mum, Mel, tells us all about their story.
The first lockdown coincided with Riley’s muscle spasms becoming more frequent and intense. Find out how lockdown affected their family and how they coped with help from the Children’s Hospice at Home Nursing Team.
The coronavirus pandemic has been a difficult period for everyone, but for Karen and John shielding six-year-old Max, it has come with additional challenges. Along with their two-year-old daughter, Martha, they have adapted to a new way of life and cared for their son differently. John has been working from home during this period while Karen has been furloughed.
Lockdown has been a difficult time for most of us with normality thrown out the window, but for Shambhavi and her family the situation became even more difficult when their daughter, Aayushi, became ill in March just at the time when many services were being put on hold.
When Ellie gave birth to twin boys Roman and Harley in March 2019, she and her partner Oli were delighted. But before long it became apparent that Roman, the elder twin was struggling and after tests, he was diagnosed with a life-threatening condition called Alagille syndrome.
Jessica Newell has Leigh Syndrome, a mitochondrial disease that means her cells are dying because they have insufficient energy to keep functioning. The nurses from the Children’s Hospice at Home Team became the lynchpin of the family’s care and support.
Helen and Simon’s son Jack, aged 5, suffered brain injury at birth and is unable to walk, talk, sit unaided or see. Mum Helen tells us Jack’s story and how she could not do without the help of the Children’s Hospice at Home Team that The Pepper Foundation helps to fund.
During birth, Cerys was left without oxygen for 35 minutes and sustained profound brain injury during this time, with a diagnosis of severe Cerebral Palsy. Find out how the Children’s Hospice at Home nursing team helped Julia, Cerys’ mum, and their family.