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Case Studies

Find out about some of the families that have received care from the Children’s Hospice at Home Team that the Pepper Foundation helps to fund.

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Every year, The Pepper Foundation and the Children’s Hospice at Home service managed by Rennie Grove Hospice Care help between 50 and 60 families. Every child’s healthcare needs are different, and every family has different circumstances to take into consideration. The nursing team provides services that meet the unique care requirements of each patient.

These are some of the stories from families we have helped.

Caring For Finley

Four years ago, proud big brother Danny (aged 3) and his parents were thrilled to welcome baby Finley home in time for Christmas. Born with an as-yet undiagnosed genetic condition, he’d spent his first three weeks in hospital. In March 2019, just three months old, Finley was diagnosed with Shinzel Giedeon syndrome, an extremely rare condition that affects fewer than 10 people in the UK.

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James’ Story

With two young sons – James, three years and Samuel, 15 months – life for Rachel and Paul Lockyer was just like that of every other family with a lively toddler and a new baby – hectic and happy.

But things changed dramatically one day that led to both James and Samuel being diagnosed with an exceptionally rare medical condition that transformed the lives of the whole family.

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Sienna’s Story

Six-year-old Sienna is a feisty, confident, outgoing girl. She was diagnosed with neuroblastoma at an early age. Sienna’s mum, Mel, tells us all about their story.

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Riley and Stanley’s Story: Coping in Lockdown

The first lockdown coincided with Riley’s muscle spasms becoming more frequent and intense. Find out how lockdown affected their family and how they coped with help from the Children’s Hospice at Home Nursing Team.

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Max’s Story: Children’s Hospice at Home Care During Covid-19

The coronavirus pandemic has been a difficult period for everyone, but for Karen and John shielding six-year-old Max, it has come with additional challenges. Along with their two-year-old daughter, Martha, they have adapted to a new way of life and cared for their son differently. John has been working from home during this period while Karen has been furloughed.

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Aayushi’s story: Supporting families during lockdown

Lockdown has been a difficult time for most of us with normality thrown out the window, but for Shambhavi and her family the situation became even more difficult when their daughter, Aayushi, became ill in March just at the time when many services were being put on hold.

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Jack’s story

Helen and Simon’s son Jack, aged 5, suffered brain injury at birth and is unable to walk, talk, sit unaided or see. Mum Helen tells us Jack’s story and how she could not do without the help of the Children’s Hospice at Home Team that The Pepper Foundation helps to fund.

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Cerys’ story

During birth, Cerys was left without oxygen for 35 minutes and sustained profound brain injury during this time, with a diagnosis of severe Cerebral Palsy. Find out how the Children’s Hospice at Home nursing team helped Julia, Cerys’ mum, and their family.

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